![]() Many patients don’t know that genetic testing is incredibly valuable because it can identify the specific gene mutation causing their disease,” commented Bridget Vissari, founder of Achroma Corp. “The results of this survey underscore the challenges that people with Achromatopsia face in receiving an early and accurate diagnosis. ![]() ![]() The survey, conducted in partnership with Applied Genetic Technologies Corporation (AGTC NASDAQ: AGTC), the gene therapy company, was distributed through Achroma Corp’s network and received 226 responses from individuals who have been diagnosed – or have a child who has been diagnosed – with Achromatopsia, a rare inherited retinal disorder that is associated with a significant reduction in visual acuity, extreme light sensitivity causing day blindness, and complete loss of color discrimination. The Understanding the Achromatopsia Patient Experience survey was conducted online in January 2018 on behalf of Achroma Corp. 07, 2018 (GLOBE NEWSWIRE) - Achroma Corp., a non-profit 501(c)(3) tax-exempt charity dedicated to raising awareness and finding a cure for a rare form of blindness called Achromatopsia, announced results of a new global survey, Understanding the Achromatopsia Patient Experience. Only 58% of Adults and 65% of Children with Achromatopsia Have Received Genetic TestingīUTLER, Pa., Aug. (Bloomberg) - US chemicals group Huntsman Corp.More than One-Third of People with Achromatopsia Were Misdiagnosed with Retinal or Cone Dystrophy is in advanced talks to sell its textiles unit to private equity firm SK Capital Partners, according to people with knowledge of the matter. The groups are discussing a deal that would value the business at less than $1 billion, said the people, who asked not to be identified because they weren’t authorized to speak publicly. achroma (n) pallor or paleness caused by a disease or deficiency. A final decision hasn’t been made and Huntsman could elect to keep the unit, the people said. The IRS is significantly delayed in processing nonprofits annual tax filings (Forms 990).Ī corps perdu - (adv) with lost body, impetuously, or in desperation. Achroma Corp is a Non-profit organization located in 250 Vogel Rd, Butler, Pennsylvania, US. SK Capital could potentially combine the unit with Archroma, the business it built when it bought textile chemicals, paper specialties and emulsions assets from Swiss company Clariant AG in 2013.Ī representative for Huntsman declined to comment. As a result, the Finance & Accountability score for Achroma Corp is. Phone number, Photo, Opening hour, Payment method and Map. Achromatopsia is an autosomal recessive disease that affects approximately 1:30,000 individuals and is associated with complete loss of cone function. A spokesperson for SK Capital didn’t respond to requests for comment. It is most commonly caused by mutations in the CNGB3 and CNGA3 genes and is associated with severely reduced visual acuity and extreme photosensitivity, resulting in daytime blindness. Huntsman, based in The Woodlands, Texas, announced in December that it was conducting a strategic review for the unit. 1957 line & Film Corporation, New York, N.Y. Huntsman had been embroiled with activist investor Starboard Value earlier this year with the group attempting to replace four directors in order to improve the chemical company’s financial performance. means for feedbacterium fuscum, Flavobacterium breve and Achroma- ing a. The effort failed, with all 10 board members re-elected as Huntsman touted its outperformance against its peer group. The textile unit, which is headquartered in Singapore and makes dyes for cotton, wool, nylon, and polyester textiles, had about $100 million in adjusted earnings before interest, taxes, depreciation and amortization in 2021, according to a company statement.
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